Wednesday, April 15, 2009

Like Night and Day

Well I mentioned a few weeks ago that when I stopped my antibiotics I had a relapse of symptoms.:-( It happened very quickly... like just a day after ceasing the antibiotics. I started taking them again and just about as quickly as the symptoms had come back they went away! Yay! I'm feeling pretty good right now.

Right now we are in Chicago. I'll post more about that on my other blog when we get home. Holden had his appointment in MO yesterday. The doctor is pleased with his progress. He prescribed some new anbitiotics. He also said he probably doesn't have babesia so we are not going to take those meds anymore (though he isn't sure if it was them that caused the rash). Holden was taking them for 10 days before the rash started and we didn't notice a herx and if he had babesia we would of been able to tell.

Well I'm off to get ready. We have A LOT of stuff to do today.

Just wanted to update about how we are doing.

Friday, March 27, 2009

A very very late book review

First I want to apologize to Bryan Rosner. Many many months ago (maybe even a year?) Bryan sent me a book he had written called The Top 10 Lyme Disease Treatments. I immediately read it when I received the book, but failed to write my review. Have I mentioned Procastination is my middle name?

Without further ado, here is my review about the book:

When I first read this book, I was impressed about how throughly Bryan covers different treatments of Lyme Disease. Anyone who knows someone who has Lyme Disease or has it themselves knows that there is no one treatment for everyone. It definitely isn't one size fits all. In discussing all of these options, Bryan gives hope to those who have failed to get better.

I also felt like I could relate with Bryan. He is very knowledgable about Lyme Disease not only because he has done research, but because he has battled Lyme Disease- and won!

I feel like I gained a lot of knowledge from reading Bryan's book. When I first received the book I was very confused about what I was up against. It was early on in my treatment and I had so much information coming at me from doctors, the internet, other books, ect. I felt like Rosner's book included most of what you need to know and made it easier to understand than many books I have read.

I strongly suggest The Top 10 Lyme Disease Treatments for anyone who is dealing with Lyme Disease. It will help you better understand the different treatment options you have. If you are like me, you will feel empowered and hopeful after finishing the book.

Thank You Bryan Rosner for putting together such a complete, informative guide to treating Lyme Disease. It is a treasure to the Lyme community and will help many people.


Okay so I guess my troubles with Lyme Disease are NOT over. Ughhh!!!! My doctor was planning on taking me off of everything when I see him on Monday. Earlier this week I ran out of my antibiotics. It seemed stupid to get them filled if I would be taking them for less than a week. So I decided to go ahead and stop taking them.

The first day I was doing good. The second I noticed I was a little achey, but didn't really think anything of it. Now yesterday and today my symptoms have been coming back full force. I feel lightheaded a lot and my heart is acting up. I have been having palpataions and this heavy, congested feeling in my chest. I had forgotten about how much the heart symptoms suck!

I was really bummed yesterday because this means I am not done. However now I think I have a game plan. I'm seeing my doctor on Monday so I'm going to tell him about everything and see about starting Malarone- I really feel in my heart that I could have the co-infection Babesia. It's a gut instinct I have. I feel like that is what is keeping the Lyme from going away. I'm going to see if he will put me on the Babesia meds and try a new antibiotic like Zithromax or stay on Doxy, if I can. I'm hoping this plan of attack will work.

And on top of all the symptoms coming back I'm faced with another problem. Last week my doctor sent a letter saying he is dropping his insurance. He is going to be treating Lyme full time. (hey that rhymed!) I'm happy that he is going to be only focusing on Lyme because Lord knows we need more doctors, but now I'm going to have to figure out how to pay all of my health expenses out-of-pocket. When I got the letter I wasn't too worried because I thought my treatment was coming to an end, but I guess you never know with this disease.

I just have to keep repeating, "Whatever doesn't kill me makes me stronger ... Whatever doesn't kill me makes me stronger... Whatever doesn't kill me makes me stronger."

Now I just have to believe it!

Friday, February 27, 2009

Doing good

I'm almost hesitant to type that title. This disease has been a roller coaster to say the least and at times I feel like I'm walking on egg shells. I have been feeling good, normal, like myself.

I had a doctor's appointment on Tuesday. It went well. I will return next month and more than likely be taken off my antibiotics. I'm excited but scared at the same time. I've been taking medicine for 20 long months. I am excited to not have to do that day in and day out but I'm also scared that my symptoms will come back!!

I want to have another baby so badly and I am scared my health will stand in the way of that. I'm doing good now, but how long will that last? I hope for a really long time...but there is now way of knowing.

So that's where I stand.

Holden is doing well. He is on a new antibiotic. I was surprised when I got it filled and saw that he would have to take pills. They are little, but still he is only four! However once he got the hang of it he has been swallowing them with no trouble.